Events

EVENT POSTPONED: The session (detailed below) due to take place on Wednesday, 1 May 2024, at 1pm – 2 pm, has been postponed to a later date.

Speakers: Julia Hackett (Senior Research Fellow) and Laura Barrett (Research Associate) are both based in the Paediatric Palliative Care Research Group, University of York

   

Title: Parent and professional experiences of 24/7 paediatric end-of-life care: a mixed methods study

 

Overview: The aim of the study is to develop a complex intervention to help the delivery of, and access to, 24/7 paediatric end-of-life care in the North East and Yorkshire region. The study will assess parent and professional experiences and needs, and patterns of care at end of life and outcomes in other regions where interventions have been developed.  The study has three workstreams: WS1: focus groups with health professionals; WS2: interviews with parents (parents of a child with a Life Limiting Condition and also bereaved parents); and WS3: a quantitative assessment on emergency healthcare use in the last 12 months of life, place of death and cost estimations

Register here or email [email protected]

RIPEN (Research In Palliative and End of life care NE) is a group of clinicians and academics from across the region who aim to bring together different people and organisations from a wide range of backgrounds, to grow palliative and end-of-life care research in an area where patients and families are most likely to benefit. If you are interested in this area of research please go to the RIPEN Network for more information.