Background
I am a Senior Research Associate at Newcastle University and a post doctoral NIHR Dementia fellow. I am passionate about improving care and support for people living with dementia and their families through research which includes experts by experience. Over the last 17 years I have worked with people, their families, and health and social care professionals to find out about peoples experiences of dementia; the support people want and need, and what is needed to help people get this. I continue to work on a range of research studies to improve support from pre diagnosis through to end of life, in a range of settings.
I strongly believe in translating research findings into meaningful resources to support people living with dementia. I continue to have a leading role in the development and promotion of Forward with Dementia which aims to provide support from the point of diagnosis https://www.forwardwithdementia.org/en/
Project Summary
My fellowship will explore how integrated care systems can support people living with dementia and their families from underserved communities to access appropriate and joined up health and social care. I will also explore the role of football clubs and associations and their potential for providing culturally appropriate dementia support for people who are traditionally less likely to access dementia services and support.
Areas of interest
- Qualitative research
- Translating research findings into practical and accessible resources
- Underserved communities with a focus on socio-economic disadvantage
- Championing the voice of people living with dementia
- Integrated post diagnostic dementia support
- The role of football/sports organisations in providing dementia support
Publications
Full publications list:
https://www.ncl.ac.uk/medical-sciences/people/profile/mariepoole.html
Selected relevant publications below:
- Wheatley A, Poole M, Robinson L. Changes to postdiagnostic dementia support in England and Wales during the COVID-19 pandemic: a qualitative study. BMJ open 2022, 12(2), e059437.
- Poole M, Wilson W, Wilcock J, Rait G, Robinson AL, Butcher L. Finding a way to move forward with dementia. Newcastle upon Tyne: Newcastle University, 2022. Available at: https://from.ncl.ac.uk/moving-forward-with-dementia.
- Poole M. Living well as dementia progresses: helping carers across the world to feel more prepared and supported. British Geriatrics Society, 2019. Available at: https://www.bgs.org.uk/blog/living-well-as-dementia-progresses-helping-carers-across-the-world-to-feel-more-prepared-and.at: https://www.bgs.org.uk/blog/creating-extra-carer-support-through-a-massive-open-online-course
- Wilcock J, Poole M, Brodaty H, Robinson L, Rait G. Co-designing toolkits to improve post-diagnostic support for people living with dementia, care partners and health and social care professionals (COGNISANCE). Alzheimer’s & Dementia: The Journal of the Alzheimer’s Association 2021, 17(S8), e054415.
- Poole M, Wilcock J, Rait G, Brodaty H, Robinson L. Overcoming barriers to a diagnosis of dementia: Can we do it?. International Psychogeriatrics 2020, 32(5), 555-557.
- Poole M, Bamford C, McLellan E, Coe Dorothy, Young J, Harrison-Dening K, Robinson L. A valuable specialist role to support end of life care . Journal of Dementia Care 2020, 28(5), 32-35.
- Robinson L, Poole M, McLellan E, Lee R, Amador S, Bhattarai N, Bryant A, Coe D, Corbett A, Exley C, Goodman C, Gotts Z, Harrison-Dening K, Hill S, Howel D, Hrisos S, Hughes J, Kernohan A, Macdonald A, Mason H, Massey C, Neves S, Paes P, Rennie K, Rice S, Robinson T, Sampson E, Tucker S, Tzelis D, Vale L, Bamford C. Supporting good quality, community-based end-of-life care for people living with dementia: the SEED research programme including feasibility RCT. National Institute for Health Research, 2020. 8.
- Poole M, Davis N, Robinson L. Massive open online courses: enhancing caregiver education and support about dementia care towards and at end of life. Age and Ageing 2019, 49(2), 171-174.
- Poole M, Yemm H, Young J, Davis N, Robinson L. Living well as dementia progresses: a MOOC for all. Journal of Dementia Care 2019, 27(6), 20-23.
- Poole M. Creating extra carer support through a massive open online course. British Geriatrics Society, 2019. Available
Get in touch
Email: [email protected]
ORCID ID: 0000-0001-8379-7462
Twitter: @mariepoole77