Resources

This PICE induction pack is for anyone new to public involvement and community engagement in the North East and North Cumbria.

If you prefer, you can download a PDF version of this pack at the bottom of the page.

Introduction to the ARC (Applied Research Collaboration) North East and North Cumbria (NENC)

• Plain Language Summary
• Home – ARC (nihr.ac.uk)

What is Public Involvement & Community Engagement?

• The role and activities involved in health and care research are described here: Public Involvement and Community Engagement – ARC (nihr.ac.uk)
• The PICE Strategy for the ARC NENC: Our Public Involvement & Community Engagement Strategy – ARC (nihr.ac.uk)
• The PICE Strategy is built on the UK Standards for Public Involvement: UK Standards for Public Involvement (google.com)
• NIHR Guidance on Public Involvement: PPI (Patient and Public Involvement) resources for applicants to NIHR research programmes | NIHR

 Roles/activities

Public contributors are members of the public who get involved in research. Activities might include:

• Identifying research topics and questions of importance to members of the public, patients and service users
• Acting as applicants alongside researchers on funding grants
• Offering advice and feedback as a member of a project’s steering group/research team
• Reviewing documents
• Helping to develop materials such as information sheets, interview guides or questionnaires
• Carrying out interviews/taking part in focus groups with research participants
• Analysing data
• Writing up research findings
• Helping to share research findings and get research evidence into practice.
• Co-delivering training, seminars, workshops or attending conferences
• Co-authoring papers, articles or reports
• Writing blogs or content for ARC website & social media
• Representation at a governance level across the ARC (Stakeholder Board, Executive Board, Implementation Advisory Group, EDI Group etc.)

Training, learning and development opportunities

• E-Bulletin – Circulated weekly this bulletin contains news, opportunities to engage in new areas of research, events, training, tools and resources.
• The ARC NENC has a Virtual College which provides information about training and learning opportunities: The Virtual College Training Hub
• There are a number of free online training resources available: Homepage – Learning for Involvement

Support/Networks

• Public Advisory Network – This group includes individual members of the public, service users, carers, experts by experience and voluntary/community sector groups. It meets quarterly, either online or as a hybrid online/face to face meeting. Meetings are chaired by a member of the Network. For further information please contact: [email protected] – Public Advisory Network Registration Form
• Young Public Advisory Network – A group of young people who meet regularly both online & in person to discuss opportunities to engage in health and social care research. For further information please contact: [email protected] – Young Public Advisory Network Registration Form
• PICE Special Interest Group – Meets online on the last Thursday of the month. Each session will focus on a different theme, area of interest related to public involvement & community engagement. For further information please contact: [email protected]
• Mental Health Special Interest Group – a group of researchers, public contributors, practitioners, clinicians and VCSE organisations with an interest in mental health. For further information please contact: [email protected]
• Deaf/British Sign Language (BSL) Experts by Experience Group – a group that includes D/deaf people, people who use BSL, practitioners and VCSE organisations. For further information please contact: [email protected] OR [email protected]
• Developing PICE In Care Homes – For further information please contact: [email protected]

Remuneration

• ARC Remuneration Policy 2023
• Payment guidance for researchers and professionals | NIHR

Glossary of terms and abbreviations

ARC – Applied Research Collaboration
AHSN – Academic Health Science Network
BAME – Black, Asian and Minority Ethnic
BSL – British Sign Language
CCG – Clinical Commissioning Group
CED – Centre for Engagement and Dissemination
CRN – Clinical Research Network
CVS – Council for Voluntary Services
ESRC – Economic and Social Research Council
Fuse – Centre for Translational Research in Public Health
HRA – Health Research Authority
ICPHR – International Collaboration for Participatory Health Research
ICS – Integrated Care System

ICB – Integrated Care Board

INVOLVE – www.invo.org.uk (the national advisory group for the advancement and
promotion of public involvement in research)
LGBTQ+ – Lesbian, gay, bisexual, transgender, queer/questioning + other sexual
identities
PAN – Public Advisory Network
PIC – Public Involvement Community (National NIHR/ARC Group)
PICE – Public Involvement and Community Engagement – the term adopted by ARC
NENC (see below)
PiiAF – Public Involvement Impact Assessment Framework
PPG – Patient Participation Group
PPI – Patient and Public Involvement
NENC – North East and North Cumbria
NIHR – National Institute for Health and Care Research
RDS – Research Design Service
SPCR – School of Primary Care Research
SPHR – School of Public Health Research
VCS – Voluntary and Community Sector
VOICE – VOICE is a national organisation, hosted by the National Innovation Centre
for Ageing based in Newcastle that aims to harness the insights and ideas of
members of the public on research and innovation. It includes a fully accessible
online open platform
VONNE – Voluntary Organisations Network North East
YPAGNE – Young People’s Advisory Group North East
YPAN – Young Public Advisory Network

This information was last updated in September 2023